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      <name>Text</name>
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                <text>Epidemiología y características de lesiones melanocíticas uveales en un hospital oftalmológico de Buenos Aires /  Pablo Franco, Carlos Plotkin, Pablo Rivera, Oscar Croxatto.</text>
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                <text>vol. 4, n. 1 (otoño 2005), p. 6-8Título: Oftalmológica Santa Lucía</text>
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                <text>Epidemiología y factores de riesgo de la degeneración macular asociada con la edad.</text>
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                <text>Zabalo, Eduardo</text>
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                <text>La degeneración macular asociada con la edad (DMAE) es la tercera causa de ceguera en todo el mundo; la primera en los países industrializados y es la fuente más frecuente de pérdida visual central e irreversible en uno o ambos ojos en las personas mayores de 50 años de edad en Europa y en los Estados Unidos. El 80% de los pacientes afectados tiene la forma atrófica o no exudativa de la enfermedad. La forma neovascular o exudativa, con su historia natural, es responsable de cerca del 90% de los casos de severa pérdida de agudeza visual. Ante la evidencia presentada se refuerzan los siguientes conceptos: el incremento de la edad sigue siendo el principal factor de riesgo asociado al desarrollo de la DMAE y en relación con el incremento en la expectativa de vida, la DMAE es la principal causa de ceguera en los países económicamente más desarrollados.</text>
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                <text>Consenso de la SARyV sobre la Degeneración Macular Asociada a la Edad</text>
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                <text>Sociedad Argentina de Oftalmología</text>
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                <text>Archivos Argentino de Oftalmología, nro. 19, diciembre de 2021, p. 67-71.</text>
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              <elementText elementTextId="87621">
                <text>5 p.</text>
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                <text>2362-4736</text>
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              <elementText elementTextId="87623">
                <text>Español</text>
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                  <text>Revista Oftalmología Clínica y Experimental</text>
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&#13;
Describir la epidemiología de la epidermólisis bullosa (EB) en Argentina, su distribución geográfica y la frecuencia de manifestaciones oftalmológicas, evaluando su repercusión en la calidad de vida de los pacientes.&#13;
&#13;
Materiales y métodos&#13;
&#13;
Se realizó un estudio observacional, transversal, mediante un cuestionario digital difundido a nivel nacional entre octubre de 2023 y marzo de 2024. Se incluyeron pacientes con diagnóstico clínico de EB, o sus cuidadores, que otorgaron consentimiento informado. El formulario relevó datos demográficos, tipo y herencia de la EB, acceso a diagnóstico genético, tratamientos dermatológicos, complicaciones oftalmológicas y percepción del impacto visual en la vida diaria.&#13;
&#13;
Resultados&#13;
&#13;
Se recopilaron datos de 84 pacientes (edad promedio: 18,4 años; 52% varones). La mayor concentración de casos se registró en la provincia de Buenos Aires, seguida de Córdoba y Santa Fe. El subtipo más frecuente fue EB distrófica (n=40), seguida de EB simple (n=17). El 26% no tenía acceso a diagnóstico genético. El 16,5% reportó complicaciones oftalmológicas que requirieron atención urgente, siendo úlceras y lesiones oculares las más comunes. Entre estos, el 39% refirió disminución de la agudeza visual, frente al 8% en quienes no presentaron urgencias oftalmológicas. El 31% señaló algún grado de impacto visual en sus actividades cotidianas.&#13;
&#13;
Conclusión&#13;
&#13;
Este estudio es el primero en caracterizar la EB a nivel nacional en Argentina, evidenciando desigualdades en el acceso a diagnóstico genético y cuidados oftalmológicos. Los hallazgos refuerzan la necesidad de implementar protocolos de seguimiento multidisciplinario y de establecer un registro nacional que integre datos clínicos y moleculares para optimizar la atención y la investigación en enfermedades poco frecuentes.</text>
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                <text>Consejo Argentino de Oftalmología</text>
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                <text>Oftalmología Clínica y Experimental, vol. 18, nro. 3, sep. de 2025, p. 292-300</text>
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